Friday, October 2, 2009

My Review of the 20/20 Albinism Story

I was pleased with the first thirty minutes of the show. I think they gave a lot of accurate and helpful information.

The very first story about the baby with Albinism immediatley brought tears to my eyes because that has been my life for the passed year. Everything they said was like it was coming from my own mouth. That sweet baby girl looked so simiilar to my Care Bear and it just really hit home hard. It's a devistating diagnosis as a parent because you know your child is going to live with this condition for the rest of their life. Just like the model with Albinism said, "A lot of people outgrow things, but you can't outgrow Albinism" That's what goes through my mind every day.

To see this show and hear other's stories that are living with this condition is numbing. The little boy that said people pick on him and call him names, the girl that spends 20 hours alone and said people try to trip her while walking down the halls. That's the cruelty my daughter is going to have to endure one day..or possibly every day.

As I sit here, tears still streaming down my face, I think about my beauitful little girl that deserves as much equality as every other child and I just pray that she receives it. I know how cruel the world can be, especially to someone who looks a little different. It's so hard as a mom, I think because I just want to protect her and I know that I can't forever. It makes me so angry watching this show that I feel like i'll go ring some little kids neck if they mistreat my baby! I don't know if it will ever get easier. But for now, i'm so very happy they aired this story and i'm so thankful that so many of you have watched it for Care Bear and all the others out there living with Albinism.

Now for the Tanzania part. That was horrific and so incredibly inhumane. I had to quit watching because it made me nauseous. I can't even imagine and I don't want to. You can sign a petition that will be delivered to the Tanzanian govt here


Remember to think about this story and the real people it involves next time you make a joke about being "Albino" or you see someone who looks different. {not that any of you do..i'm just saying}

14 comments:

Amanda October 2, 2009 at 10:18 PM  

Just so you know, when I look at Carrah, I don't think "OMG, she's an albino! Ew!" I think, "OMG, could that little girl be any more beautiful?!"

You are an amazing woman and mama. You have gorgeous kids. You are doing a fabulous job raising them. I know it's scary to think about how kids will treat Carrah because they think she is different, but if she's anything like I imagine you to be, I'm sure she can handle it. You're a strong woman and I'm sure your daughters will be nothing less.

xoxo

Kat October 2, 2009 at 10:25 PM  

Kaycee, thanks for letting us know on FB about the 20/20 episode tonight. My husband and I just watched it and like you, I'm glad it was aired in order to educate people a little more about Albinism.

The second half was just sickening. Broke my heart. Thank you for the link to the petition.

You're a great Mum and I know Carrah is very lucky to have you. she'll do great in life with your support.

BTW - her 1st birthday pics... adorable.

Janet October 2, 2009 at 10:53 PM  

Kaycee!
I almost don't know what to say. You are such an amazing woman with (SERIOUSLY) two of the most beautiful girls I have ever seen! I am so thankful for your story and the way you are educating people! I pray that Care Bear will never experience the hatred that some of these other people have. She is exceptional in every way and deserves so much!

The story was educational and heartbreaking! Sometimes I struggle with wanting to hate the people that act the way they do. Life is so not fair! I agree that the first story with the precious baby reminded me a lot of your story with Care Bear. I remember how you felt during that time. As your friend it was so hard to see your hurting.

The end of the show brought so much hope though. It was awesome to see those children thriving and achieving things. I know that Care Bear will be the same way. She IS beautiful!!! She IS amazing!!! She WILL do great things!!! She already is doing great things! I hope that you can spread the word to the world and educate everyone out there. Thanks for being so vulnerable and sharing your story. Your family is wonderful and I look forward to years of watching your precious girls grow! I am here for support in whatever way you need ever. Love ya girl!!

Casey October 3, 2009 at 3:28 AM  

I liked that they showed it but I do wish there were a few more positive things shown. I hated how they used the word albino but I also just hate putting the condition before the person and that is what albino does.

And, I don't see how anyone could ever make fun of your care bear, she is just precious and going to be a hit with the boys. Your hubby will have his hands full keeping off the boys with your two girls!

Jennifer October 3, 2009 at 8:32 AM  

I also watched the show and I was so happy to hear about the young lady who is a model and the story about the twin boys was very interesting. Thanks for sharing with us that the show would be on.

It is funny because just the other day when I was looking at Bear's birthday pictures, I thought to myself, this girl is going to be amazing. The pictures just made me think that she isn't going to take s**t from ANYONE! I think the most important thing you can do is raise her to love herself, and I am pretty sure she thinks she is something special!!!! Love her, educate as many people as you can and trust in God, that is all you can do.

Lara October 3, 2009 at 10:30 AM  

I watched it and also thought of Care Bear when the first little baby was on there. I'm so glad that I have had you to educate me and other people on Albinism. All I knew before was about the lack of pigmentation. The last part of the documentary was just heart wrenching and horrible! I can't believe there are such sick people in this world. It makes me want to just go grab all of those little kids and give them a big bear hug and tell them how special they really are! I'm so glad that I was able to watch it be educated a little bit more about it so that I can pass it on to others.

Ashlee October 3, 2009 at 10:34 AM  

Carebear is a beautiful little girl!You are a great Mom, and I know that your positive outlook will affect how your daughters think, so keep it up!

... and if we are kickin' some booty.. I'm in! ;)

*Kc* October 3, 2009 at 11:20 AM  

Thanks everyone! Yall made me laugh and cheer up a lot! I appreciate it. I'm happy they did the story. I wish it was a little more positive and uplifting,b ut overall so happy they got the word out a little!

Jennifer. I LOL so hard at your "she wont take s**t off anyone" because that's what we say around here. She is a tough lil cookie and I know she'll stand her ground!

Mel October 3, 2009 at 12:02 PM  

I did not see the show, but I would like to see it. Maybe I will see if I can find some clips somewhere. Care Bear looks like a beautiful and fair-skinned beauty to me. Albinism does not come to mind when I look at her. I think if she was so fair in a family of olive or brown skinned people then the albinism would stand out more. But you are all pretty fair, so she blends right in your family. I can't imagine that anyone will ever be cruel to her. I hope not, anyway. As mothers, we do worry about our children so much.

Amber October 3, 2009 at 4:54 PM  

Mel if you go to 20/20 on the internet the whole show is on there just in clips. Carebear is a cutiepie and I honestly do not see anything "different" about her when I look at her. If she had a "different" stamped on her forehead she would still be beautiful. Conditions and handicaps DO NOT make a person who you are at heart is what makes you. Poeple should be judged on character bottomline not on looks, race, religion ect., and for thoes who are too ignorant to get that I am confident Carebear has a mama that will instill values and beliefs that will make her a strong women that will take any negativity poeple may throw her way and laugh because she will not need anoybody elses validation for her to be happy with herself and realize her true beauty.

Mel October 4, 2009 at 3:43 PM  

Amber, thanks for telling me about the clips. I have watched half of them and WOW - unbelievable. The story about Tanzania is so beyond disturbing......

mel October 5, 2009 at 2:10 AM  

I wish I would have seen 20/20, I will for sure watch it online! I would have never know Care Bear has that (but I do because you obviously have mentioned it on your blog!) You are such a great mommy & an awesome advocate for your daughter!!!

Heather October 5, 2009 at 4:42 PM  

Hey girl, I know I am late to this post, but just wanted to say that your carebear is a doll baby who is absolutely gorgeous!! I would have never know that had I not read it in one of your posts.

I know you know, but all of God's work is beautiful and He gave you a very beautiful gift in your carebear!!

JenFen October 7, 2009 at 10:35 AM  

I went back and watched the show online thanks to you making me aware and I thought it was really interesting. I think part of the reason that people question CB's diagnosis is that she doesn't really look that different, especially since your family has lighter hair and fairer complexions. In pictures, I notice it mostly in her eyes but more importantly, the only thing I ever really notice is what a cute little girl she is. I went to school with an African-American girl who had albinism and you could really tell their was something different about her. Of course back then I didn't understand but I think our society is much better about embracing diversity than ever before so I feel confident that CB will not have to endure the kind of ignorance that people once did. I didn't watch the whole clip on Tanzania. I just couldn't bear it.

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